Scientific Programme


11:00 – 13:00 Registration
13:00 – 13:30 Opening and Welcome
Welcome Eva Frey, MD Local Host
Lars Hjorth, MD Chair of PanCare Association
Helmut Gadner MD, Honorary President of the Meeting
Opening Sabine Oberhauser, MD Austrian Minister of Health

13:30 – 15:45

Chairs: Ruth Ladenstein, Vienna, Austria
Lars Hjorth, Lund, Sweden
L1.1 (20´) ENCCA/PanCare SurFup Project: Survivor Passport
Presented by Riccardo Haupt, Italy
L1.2 (25´) IGHG: International Late Effects of Childhood Cancer Guideline Harmonization Group: A collaboration of several national guideline groups, Cochrane Childhood Cancer Group, PanCare SurFup/WP-6 for guideline development
Presentation of finished guidelines
Breast Cancer: Cecile Ronckers, The Netherlands
Cardiomyopathy: Leontien Kremer, The Netherlands
Thyroid Cancer: Hanneke van Santen, The Netherlands
Male gonadal toxicity: Rod Skinner, United Kingdom
Female gonadal toxicity: Riccardo Haupt, Italy
14:30 – 15:45
Round table 1: International guidelines versus National guidelines: Implementation and Controversies
Chair: Rod Skinner, United Kingdom
Participants: Gill Levitt, United Kingdom
Claire Berger, France
Gabriele Calaminus, Germany
Edit Bardi, Hungary
Momcilo Jankovic, Italy
Katie Rizvi, Romania
15:45 – 16:15 Coffee break

16:15 – 18:00

Research of late effects during adulthood after childhood cancer

Chairs: Florent Valthaire, Paris, France
Desiree Grabow, Mainz, Germany
L2.1 (15´) Which methodology fits to which clinical question
Leontien Kremer
Academic Medical Center (AMC) Amsterdam, The Netherlands
L2.2 (15´) Epidemiology and ethical issues in research for late effects in adulthood
Peter Kaatsch
German Childhood Cancer Registry (GCCR), University Medical Center Mainz, Germany
L2.3 (15´) Clinical questions about late effects, especially genetic predisposition
Thorsten Langer1,
Oliver Zolk2
1LESS Center, Children´s Hospital, University Clinic Schleswig-Holstein, Campus Lübeck, Germany, 2Institute of Pharmacology of Natural Products and Clinical Pharmacology, University Hospital Ulm, Germany
L2.4 (15´) How can we facilitate research in daily practice of a late effects service for adult CCS
Diana Greenfield
Weston Park Hospital Sheffield, United Kingdom
17:15 – 18:00 Round table 2: What do we need from each other for research?
Faith Gibson, London, United Kingdom
The speakers and questions from the audience
18:00 Welcome Cocktail


08:30 – 10:30 SESSION 3:
Late effects during adulthood I
Chairs: Anton Luger, Vienna, Austria
Anja Borgmann-Staudt, Berlin, Germany
3.1 (8´+5´) Ototoxicity in Swiss childhood cancer long-term survivors
A. Weiss1, R. Kuonen1, R. Kasteler1, L. Wengenroth1, K. Scheinemann2, M. Grotzer3, M. Kompis4, C. Kuehni1
1University Bern, Institute of Social and Preventive Medicine, Bern, Switzerland, 2Division of Pediatric Hematology/Oncology, Children`s Hospital Lucern, Lucerne, Switzerland, 3Department of Pediatric Oncology, University Children`s Hospital Zurich, University of Zurich, Zurich, Switzerland, 4Department of ENT, Head and Neck Surgery, University Hospital Bern, Bern, Switzerland
3.2 (8´+5´) Respiratory disease after childhood cancer in Switzerland
R. Kasteler1, A. Weiss1, R. Kuonen1, G. Sommer1, L. Wengenroth1, P. Latzin2, N. X. Von der Weid3, R. A. Ammann4, C. E. Kuehni1
1Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland, 2Department of Pediatrics, University Hospital of Basel, Basel, Switzerland, 3Department of Pediatrics, University Hospital Basel, Basel, Switzerland, 4Department of Pediatrics, University of Bern, Inselspital, Basel, Switzerland
3.3 (8´+5´) (In search of potential predictors of) long term impact of chemotherapeutics on the brain of childhood leukemia survivors
I. Elens1, J. Lemiere1, E. Bossuyt1, C. van Soest1, H. Vanderstichele2, J. Cools1, S. W. Van Gool1
1KU Leuven, Leuven, Belgium, 2ADx Neuroscience, Ghent, Belgium
3.4 (8´+5´) Metabolic risk is associated with reduced hypothalamic volume in Acute Lymphoblastic Leukemia survivors 34 years after cranial radiotherapy
C. Follin1, S. Gabery2, Å. Petersen2, P. Sundgren3, I. Björkman-Burtcher3, J. Lätt3, P. Mannfolk3, E. Erfurth4
1Institution of Clinical Sciences, Lund University, Lund, Sweden, 2Translational Neuroendocrine Research Unit, Department of Experimental Medical Science, Lund, Sweden, 3Department of Diagnostic Radiology, Skåne University Hospital and IKVL/Lund University, Lund, Sweden, 4Department of Endocrinology, Skane University Hopsital, Lund, Sweden
3.5 (8´+5´) Ultrasound surveillance for radiation-induced thyroid carcinoma in adult survivors of childhood cancer
E. Brignardello1, F. Felicetti1, A. Castiglione2, M. Gallo3, F. Maletta4, G. Isolato5, E. Biasin6, F. Fagioli6, A. Corrias7, N. Palestini8
1Transition Unit for Childhood Cancer Survivors, Department of Oncology, Città della Salute e della Scienza Hospital, Torino, Italy, 2Unit of Clinical Epidemiology, University of Torino and Centre for Cancer Epidemiology and Prevention (CPO Piemonte), Torino, Italy, 3Oncological Endocrinology Unit, Department of Oncology, Città della Salute e della Scienza Hospital, Torino, Italy, 4Pathology Unit, Department of Medical Sciences, University of Torino, Torino, Italy, 5Diagnostic Imaging Department, Città della Salute e della Scienza Hospital, Torino, Italy, 6Pediatric Onco-Hematology, Department of Pediatric Sciences, Città della Salute e della Scienza Hospital, Torino, Italy, 7Pediatric Endocrinology Unit, Department of Pediatric Sciences, Città della Salute e della Scienza Hospital, Torino, Italy, 8Department of Surgery, Città della Salute e della Scienza Hospital, Torino, Italy
3.6 (8´+5´) The long-term impact of TBI in pediatric stem cell transplant on the thyroid gland
N. Zubarovskaya, E. Güclü, C. Dampf, U. Poettschger, C.Peters, A. Lawitschka
St. Anna Children’s Hospital, Medical University, Vienna
3.7 (8´+5´) Musculoskeletal sequelae and rehabilitation of childhood solid tumours survivors
A. Petrichenko, E. Bukreeva, N. Ivanova, T. Sharoev, A. Prityko
Child Health Care Research Clinic, Moscow, Russian Federation
L3.8 (15´+5´) Lecture: Aesthetic and functional impairments - underestimated late effects
Manfred Frey, Igor Pona, Eva Frey
International Center for Facial Nerve Surgery Vienna, Department of Plastic and Reconstructive Surgery, Medical University Vienna, St. Anna Children’s Hospital, Medical University Vienna, Austria
10:30 – 11:00 Coffee break

11:00 – 12:00

Late effects during adulthood II
Chairs: Julianne Byrne, Dublin, Ireland
Jaap Den Hartogh, Amsterdam, The Netherlands
4.1 (8´+5´) Health of offspring of former childhood cancer patients - a survey
A. Borgmann-Staudt, M. Balcerek, E. Korte, R. Schilling
Charité, Berlin, Germany
4.2 (8´+5´) Quality of life for survivors of childhood cancer
S. De Clercq1, N. Van Damme1, K. Vande loock1, K. Emmerechts1, E. Van Eycken1, Members of the steering committee2, BSPHO3
1Belgian Cancer registry, Brussels, Belgium, 2Childhood Cancer Centers, Brussels/Ghent/Leuven/Antwerp/Liège, Belgium, 3BSPHO, Brussels, Belgium
4.3 (8´+5´) Do childhood cancer survivors participate in physical education at school and club and leisure time sports activities? - An analysis of the current status and remaining barriers
S. V. Kesting1, M. Götte1, C. C. Seidel2, D. Rosenbaum2, J. Boos1
1Department of Pediatric Hematology and Oncology, University Hospital, Münster, Germany, 2Institute for Experimental Musculoskeletal Medicine, Movement Analysis Lab, University Hospital, Münster, Germany
4.4 (8´+5´) International project on prospective analysis of radiation toxicity in childhood and adolescence (IPPARCA): patients will profit from results
P. Gehoff1, H. Christiansen1, D. Steinmann1,2, H. Eich3, K. Susek3, H. Wolters3, U. Martinsson4, H. Magelssen5, N. Willich2
1Department of Radiotherapy, Hannover Medical School, Hannover, Germany, 2Department of Radiotherapy, University Hospital Muenster, Muenster, Germany, 3University Hospital Muenster, Muenster, Germany, 4Department of Oncology, University Hospital Uppsala, Uppsala, Sweden, 5Department of Radiooncology, University Hospital Oslo, Oslo, Norway
12:00 – 13:00 PanCare Association: actual issues
Helena van der Pal
Anna Panasiuk: Newsletter
PanCareSurFup: Overview and plans for the last year
Lars Hjorth
PanCare LIFE: Actual overview
Peter Kaatsch
13:00 – 14:30 Lunch, Visit of the Poster exhibition

14:30 – 15:40

Transition – Tools and benchmarks I
Chairs: Herwig Lackner, Graz, Austria
Claire Berger, Saint Etienne, France
L5.1 (20´+10´) Lecture: Ready, steady, go: a programme to evaluate and support the individual readiness for transition
Arvind Nagra
Southampton University NHS Hospitals Trust, Southampton, United Kingdom
5.2 (8´+5´) Parents’ preferences for the organization of long-term follow-up of childhood cancer survivors
J. Vetsch1,
C. Rueegg1, L. Mader1, E. Bergstraesser2, M. Diezi3, C. Kuehni4, G. Michel1,4
1University of Lucerne, Lucerne, Switzerland, 2University Children’s Hospital Zurich, Zurich, Switzerland, 3Paediatric Hemato-Oncology Unit and Division of Clinical Pharmacology, Lausanne, Switzerland, 4Institue of Social and Preventive Medicine, Berne, Switzerland
5.3 (8´+5´) Advocacy masterclass for survivors of paediatric and adolescent cancers
K. Rizvi,
D. Tomai, E. Schipor
Little People Association, Cluj-Napoca, Romania
5.4 (8´+5´) Network oncological specialist advisory service (NOF)
R. Kampschulte1,
A. Mohr2, U. Neuhaus1, K. Kremeike1, D. Reinhardt3
1Netzwerk für die Versorgung schwerkranker Kinder und Jugendlicher e.V, Hannover, Germany, 2Medizinische Hochschule Hannover, Hannover, Germany, 3Universitätsklinikum Essen, Klinik für Kinderheilkunde III, Essen, Germany
15:40 – 16:10 Coffee break

16:10 – 18:00

Transition - Psychosocial issues
Chairs: Morven Brown, Newcastle, United Kingdom
Momcilo Jancovic, Monza, Italy
L6.1 (15´+5´) Lecture: Psychosocial issues as benchmarks for successful transition from paediatric to adult health care service
Gisela Michel
Health Science and Health Policy, University of Lucerne, Lucerne, Switzerland
6.2 (8´+5´) Screening for cognitive deficit in 8 to 14 year old children with cerebellar tumours using self-report measures of executive and behavioural functioning and health-related quality of life
K. S. Bull1,
C. Liossi1, J. L. Peacock2,3, H. Yuen1, C. R. Kennedy1,4
1University of Southampton, Southampton, United Kingdom, 2King’s College London, London, United Kingdom, 3Guy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom, 4University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom
6.3 (8´+5´) Neuropsychological methods to facilitate school participation of pediatric brain tumor patients
T. Pletschko1,
S. Knasmüller2, A. Schwarzinger1, L. Weiler1, U. Leiss1
1Medical University of Vienna, Vienna, Austria, 2University of Vienna, Vienna, Austria
6.4 (8´+5´) Childhood cancer survivors' perceptions of quality in endocrine care in Sweden
A. Pålsson1,
T. Wiebe2, C. Follin3
1Department of Endocrinology, Lund, Sweden, 2Department of paediatric oncology, Lund, Sweden, 3Institution of Clinical Sciences, Lund, Sweden
6.5 (8´+5´) Factors associated with specific worries of childhood cancer survivors: a cross-sectional survey in Japan
Y. Ishida1,2,3,
T. Higaki4, M. Hayashi3, F. Inoue3, M. Ozawa2
1Ehime Prefectural Central Hospital, Matsuyama, Japan, 2St. Luke’s International Hospital, Tokyo, Japan, 3Heart Link Working Project, Niigata, Japan, 4Ehime University Graduate School of Medicine, Toon, Japan
6.6 (8´+5´) Childhood cancer awareness education sessions under haima CZ
L. Cingrosova1,2,
V. Kotková2, T. Pasková2, Z. Somosová2, J. Kruseova1
1Department of Pediatric Haematology and Oncology University Hospital Prague Czech Republic, Prague, Czech Republic, 2Haima CZ, Association of childhood cancer survivors and parents of childhood cancer survivors, Prague, Czech Republic
6.7 (8´+5´) The psychosocial impact of a peer-support residential for young people treated for retinoblastoma
E. Hughes,
C. Preece, H. Jenkinson
Birmingham Children’s Hospital, Birmingham, United Kingdom
19:00 Departure by bus to the Vienna Heurigen Wolff

FRIDAY SEPT 25, 2015

08:30 – 09:30 SESSION 7:
Proposals for future projects
Chairs: Mike Hawkins, Birmingham, United Kingdom
Cecile Ronckers, Amsterdam, The Netherlands
7.1 (5´+5´) Arch for markers of damage in hematopoietic cells in patients “cured” after childhood cancer
F. Frassoni
Istituto Gaslini, Genova, Italy

09:30 – 10:00

Transition – Tools and benchmarks II
Chairs: Gill Levitt, London, United Kingdom
Anita Kienesberger, Vienna, Austria
L8.1 (20´+10´) Lecture: Evidenced based guidelines for models of transition: results of transition working group/WP-6 PanCareSurFup Project
Helena van der Pal
Academic Medical Center (AMC) Amsterdam, The Netherlands
10:00 – 10:30 Coffee break

10:30 – 12:40

Transition – Tools and benchmarks III
Chairs: Gisela Michel, Lucerne, Switzerland
Jarmila Kruseova, Prague, Czech Republic
9.1 (8´+5´) Transition for adult survivors of childhood cancer in Austria: ZONE makes it possible!
C. Schneider, S. Karner, A. Kienesberger, L. Kager, W. Holter, E. Frey
Österreichische Kinder-Krebs-Hilfe, St. Anna Children’s Hospital, Medical University Vienna, Austria
9.2 (8´+5´) Program of follow-up of long-term survivors of childhood cancer in Slovenia L. Zadravec Zaletel, A. Vodusek, B. Jereb
Institute of Oncology, Ljubljana, Slovenia
9.3 (8´+5´) Transition – A process not an event
E. Potter,
L. Soanes, J. Passmore, M. Taj
The Royal Marsden NHS Foundation Trust, Sutton, United Kingdom
9.4 (8´+5´) Multidisciplinary collaboration: the key to transition from pediatric oncology to adult medicine – showcased through a clinical case report
R. Cosnarovici,
Emilia Mihut, Dana Cernea, Diana Olteanu, Paula Pruteanu, Maria Cosnarovici
Oncology Institute, Cluj-Napoca, Romania
9.5 (8´+5´) Long term follow up consultation after childhood cancer in France (Rhône-Alpes region): the voices of adults and their general practitioners
C. Berger1,2,3,
L. Casagranda4,5, C. Faure-Conter6, D. Plantaz7, F. Isfan8, B. Trombert-Paviot9,5, I. Guichard10, I. Durieu11, P. Cathebras10
1Department of Pediatric Hematology and Oncology Unit, CHU St-Etienne, Saint-Etienne, France, 2Childhood Cancer Registry of the Rhône-Alpes Region, Saint-Etienne, France, 3Host Research Team SNA-EPIS, PRES Lyon, Jean Monnet University, Saint-Etienne, France, 4Childhood Cancer Registry of the Rhône-Alpes Region, Saint-Etienne, France, 5Host Research Team SNA-EPIS, PRES Lyon, Jean Monnet University, Saint-Etienne, France, 6Institute of Pediatric Hematology and Oncology, Lyon, France, 7Department of Pediatric Hematology and Oncology Unit, CHU Grenoble, Grenoble, France, 8Department of Pediatric Hematology and Oncology Unit,University Hospital Estaing, Clermont-Ferrand, France, 9Department of Public Health and Medical Informatics, University of Saint-Etienne, Saint-Etienne, France, 10Department of Internal Medicine Unit, CHU St-Etienne, Saint-Etienne, France, 11Department of Internal Medicine and vascular pathology, University Hospital of Lyon Sud, Pierre-Benite, France
L9.6 Lecture: Improving the experience of moving to adult care: developement of benchmarks for transition
Faith Gibson
Clinical Professor of Children and Young People’s Cancer Care, Centre for Outcomes and Experience Research in Children’s Health, Illness and Disability Great Ormond Street Hospital for Children NHS Foundation Trust, and Department of Children’s Nursing, London South Bank University, London, United Kingdom
11:45 – 12:45 Round table 3: Pediatric oncologists, transition specialists and adult specialists are discussing together
Chair: Eva Frey, Vienna, Austria
12:45 – 12:50 Adjournment of the Meeting
Eva Frey
12:50 – 13:10 Farewell
Presentation of the next PanCare Meeting
Lars Hjorth


No evidence for longterm chemotherapy-induced neurotoxicity for pediatric ALL patients: A prospective study
C. Sleurs1,2, J. Lemiere1, T. Vercruysse1, N. Nolf3, B. Van Calster2, S. Deprez4, M. Renard1, E. Vandecruys3, Y. Benoit3, A. Uyttebroeck1,2
1Department of Pediatric Haematology and Oncology, University Hospitals Leuven, Leuven, Belgium, 2Department of Development and Regeneration, KU Leuven, Leuven, Belgium, 3Department of Pediatric Haematology and Oncology, Ghent University Hospital, Ghent, Belgium, 4Department of Radiology, KU Leuven, Leuven, Belgium

Functional and clinical long-term outcome of Ewing sarcoma treatment
A. Ranft, C. Hoffmann, C. Seidel, H. Jürgens, D. Rosenbaum, U. Dirksen
University Hospital, Muenster, Germany

Overweight and obesity in childhood cancer survivors
C. Denzer, L. Breuninger, H. Cario, D. Steinbach, M. Wabitsch
Universitätsklinik für Kinder- und Jugendmedizin, Ulm, Germany

Bilateral synchronous testicular leydig cell tumour 12 years after hodgkin lymphoma during childhood
V. Morsellino, S. Pessano, R. Haupt
Istituto Giannina Gaslini, Genova, Italy

FeCt – Multicentre Offspring Study – the results of the participating institution St. Anna Children’s Hospital
E. Frey, M. Kalemba-Holzgethan
St. Anna Children’s Hospital, Medical University, Vienna